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Home     Pictures     Stories     Family     Guestbook

Welcome to our childrens website!

Jakob & Ava
5-12-04 & 9-14-07    05:40pm & 7:23am    9lbs. 1oz. & 9lbs.		  


 


 
 
 
Photobucket 

  Welcome to our kids website.
Jakob and Ava
 

 A little about our children.............

   Jakob had a rare brain disorder called Joubert Syndrome.  It is genetic.  Read below to find out more about his syndrome.  Jakob loved school very much, and his favorite show was Yo Gabba Gabba!  We are very sad to say, he passed away on Feb. 24th, 2009.  He had been having seizures for some time and we believe that is what caused his dealth.  We will forever remember him and love him dearly.

 
Ava loves going new places and seeing new things.  She really enjoys her toys and is currently into Barbies right now.  She loves to play outdoors the best.  She is very girly but can be rough and tough like the boys too.  She always has a smile on her face. 
 
 
 
  
Lilypie Kids Birthday tickers    
 
 
Any question feel free to ask me at  jessjill28@netzero.net       
  
 
More about Joubert Syndrome:
What is Joubert Syndrome? Joubert Syndrome is a rare, genetic disorder that affects the area of the brain that controls balance and coordination. The disorder is characterized by agenesis (absence) or hypoplasia (underdeveloped) of the part of the brain called the cerebellar vermis and a malformed brain stem.
The most common features of the disorder include ataxia (lack of muscle control), an abnormal breathing pattern called hypernea, sleep apnea, abnormal eye and tongue movements, and hypotonia. Other malformations such as extra fingers and toes, cleft lip or palate, tongue abnormalities, and seizures may also occur.
Want to help the Joubert Syndrome Foundation?
They have lots of fundrasiers going on please check out their site and help our foundation!  http://www.jsfrcd.org/HowYouCanHelp.asp
 
 

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Jakob dancing with Brobee and sister! 4.5 years old Nov 2008
 
 
A Video of Ava playing at 2.5 yrs old
Last Updated: Dec 26, 2011 






  
more pictures...

Stories

12-17-11 Finally I have a break from school!! A full month off.  I ended up with 4 A's and 2 B's in my classes.  I wish I would have gotten all A's but I am happy with that.  That was the most stressful semester of my life.  Only one more semester of classes left!! Woohoo!! This time next  year...
 More 

11-25-11  Well things have been extremely busy for us lately.  School has been very hard this semester.  I have been working hard to keep good grades.  I think I will end up with mainly B's but I am okay with that.  I really wanted A's but soon found that to be impossible.  I have really enjoyed my fieldwor...
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8-24-11 Back in school.  Ava started her first day at her new school in Sheveport.  I can tell a huge difference in her after less than 2 weeks of being there.  Her self esteem is growing and she is trying new things and doing more.  She is helping me clean now and minding much better.  She cleaned her room for the first ti...
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5-30-11 Well I am on my summer break right now from school.  Ava is as well.  We got to go to FL last week.  We had a wonderful family vacation.  The water was so crystal clear when we got there.  I also found out 2 days ago I got ACCEPTED into clinicals!! Woohoo!! I am so excited about it.&nbs...
 More 

3-19-11 Finally spring is here!! It was 83F today here and it was so nice!  Ava had spring photos done at school on Friday.  I can’t wait to see them.  I also took some new photos of her today.  She is getting so big.  I only have 7 weeks of school left.  We are also going to Florida in May for our family vacat...
 More 

Guestbook

THANK YOU,,LOVE YOU
-GREAT GRANDDAD     Dec 26 2011
Thank you for the pictures of Ava! We love them!

-Kristi     Dec 26 2011
So love all the pics, very pretty, even BriBri!
-moms/grammers     Nov 28 2011
Hope you guys aren't roasting down there! Stay cool! Love ya'll!
-Kelli, Danny & Lily     Aug 07 2011
All of the new photos are excellent! Ava has grown, dangit, hate missin this
-grammers     Aug 01 2011
 More 
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